$1,000 Prize — And The Chance To Vent About Health Costs

Costs of Care founder Neel Shah

Wanted: Hair-raising or heartbreaking tales about health care costs.

Say you’re a doctor. Your patient asks you how much the surgery you’re recommending will run him, and you have to confess that you don’t have the faintest idea. Or another patient says, “I’m still feeling a little tired. I think I”ll wait until tomorrow to go home from the hospital,” and you think but do not say, “Do you understand that this will cost you $2,500??”

Or say you’re the patient. You assume your health insurance will cover the procedure you need, and find out only weeks later that you’re facing thousands of dollars in bills. Or you go into the emergency room after a fender bender and find yourself undergoing head-to-toe body scans that will leave you deep in debt.

A Boston non-profit group, Costs of Care, has just announced a national contest aimed at gathering “the best anecdotes from patients and clinicians illustrating the importance of cost-awareness in medical decision-making.” The judges include former Gov. Michael Dukakis; Jeffrey Flier, the dean of Harvard Medical School; and surgeon/New Yorker writer Atul Gawande. The deadline is Nov. 1, and details are here.

Dr. Neel Shah, the founder of Costs of Care and a resident in obstetrics and gynecology at Brigham and Women’s Hospital, says the contest stemmed from “my belief that one compelling story is worth 100 academic papers on a subject.”

“We already have evidence that health care costs are harmful to the country and to Americans on the individual level,” he said. “We don’t need more of that, what we need is motivation.”

Shah founded Costs of Care last year, with the “crazily ambitious” goal of bringing on “a paradigm shift in the culture of medical decision-making toward more cost awareness.”

“For generations,” he said, “it’s always been that if you’re going to give a patient a test or treatment, there are two criteria: it has to be safe, and if proven safe, it has to have some reasonable chance of working. And if it might work, you can go ahead and do it.” In fact, Shah said, “it’s increasingly important to ensure that not only it’s safe and it works, but that it’s reasonably cost effective.” Not that he’s advocating Draconian denials of care: “I want this to be about doctors and patients making decisions together,” he said.

[Relevant digression: Dr. Arnold Relman reviews a new book, “Tracking Medicine: A Researcher’s Quest to Understand Health Care” in the latest New York Review of Books. He writes in part:

Of all the providers of medical care, physicians are most important in determining how much will be spent. In the US they account for only about 20 percent of medical expenditures, of which about half they use for expenses. But in treating patients, physicians call on the facilities and services of all the other providers of care—hospitals, imaging centers, diagnostic laboratories, manufacturers of drugs and equipment, etc.—and thus they control most medical expenditures.

Entries have begun to roll in for the contest, Shah said, and some of the most compelling involve people who had health insurance but then found themselves facing enormous bills. One entrant has already posted an enlightening story in the Comments section here about saving $12,000 by using over-the-counter skin treatments even though insurance would cover prescription medication.

Sponsors include Massachusetts insurers — Blue Cross Blue Shield, Harvard Pilgrim and Tufts Health Plan — as well as Beth Israel Deaconess Medical Center and the American Association of Physicians of Indian Origin.

p.s. If you’re sending in an entry and want to send it to CommonHealth as well for posting, just hit the “Get in touch” button at the bottom of the site and send it along for consideration.

  • Jen

    I am a Registered Nurse and have been for almost 18 years. I have worked for both for-profit and for non for-profit hospitals and organizations. The biggest problem that I see? Physicians being unwilling to tell someone that there is REASONABLY nothing more that can be done for them. The MD’s unwillingness coupled with (usually) the patient/families inability to comprehend the situation is disheartening and becomes debilitating to take care of. I’ve seen a wide variety of patients and families – pediatric to geriatric – struggle with EOL (end of life) issues, but with the right information and tools it can be dealt with much more appropriately.

    As someone who is dedicated to helping to “heal”, I take this to heart in every sense of the word. Often times, unfortunately, “healing” doesn’t mean making the patient better but rather tending to the entirety of that persons situation – including their family. Rather than picking up after a surgical nightmare or a horrific code (which could and should have been avoided at all costs), I would rather see a family member hold that person before they pass, or allow that patient to die at home with dignity.

    I was speaking with one of the Hospitalists at my Hospital the other day regarding one of the surgical patients that he was consulting on. She was 83 years old and had undergone a successful, elective knee surgery. Listed on her H & P was a list of “tests to be done” in the upcoming year: one of the items listed? A PAP SMEAR!! I was aghast and the Physician was more than a little embarassed when asked to explain the rationale. I look at situations like this as Medicare abuse (and probably why there won’t be any Medicare when I retire). I’ve also seen extraordinary amounts of testing ordered, TPN being instituted, “Palliative” chemo/radiation ordered and countless other ridiculous things, when no-one has honestly told the patient that what is being done is fruitless and not life prolonging or enhancing/sustaining the quality of that life.

    We as nurses are forced to look death in the face daily, and having worked in Hospice I’ve often been the one to have to tell that patient or the family the ‘truth’. Why should a Physician be fearful of doing so? The patient looks to them as some sort of omnipotent, all-knowing God; yet that “God” often shuffles quickly out of the room mumbling incoherently leaving them with questions that I have to answer. Part of anyones training in medicine should be about how to face death and dying – one semester of Psychology hearing of Elizabeth Kubler-Ross’ 5 stages doesn’t cut it.

    Cut needless expense and give patients their dignity – it seems like such a small thing, but it is extremely measureable (dollar-wise) and nothing compares to what could be deemed as a “good death”, although that may seem like an oxymoron to most. Anyone truly invested in a persons well-being knows that a short, quality life is far more desired than a drawn-out and miserable one.

  • http://Dentistnj.cm Dipika Shah, DDS, MAGD

    Excellent initiative. We need to see more physicians understanding the other side, patient’s financial obligations. In this technological world, it should not be too difficult to calculate for each medical procedure, what would be patient’s out of pocket expense. Patient should be presented with Risk, benefit and alternatives (RBA) along with cost for making the choice. That’s called informed decision. Hope you get lot more support from physicians. It will not only help patients but everyone. Health cost is already lot higher than many other countries and it is still sky rocketing, in USA. We should have open debate and support of Government, doctors, lawyers, patients, legislators, insurance companies, all to work towards the same goal t achieve better results. This country offers superior medical health, let’s make it more affordable, too.