April 27, 2012 | 7:12 AM |

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Riley being examined by Dr. Cameron Trenor, the principal Investigator of the sirolimus trial at Children's Hospital Boston, at a check up in February, 2012. (Jesse Costa/WBUR)

Riley being examined by Dr. Cameron Trenor, the principal Investigator of the sirolimus trial at Children’s Hospital Boston, at a check up in February, 2012. (Jesse Costa/WBUR)

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Jesse Costa is a multimedia producer for WBUR. View all posts by Jesse Costa →