Confessions Of A Herpes Sufferer Turned Activist

Even though it’s a good bet that some of your best friends, neighbors and family members have herpes (overall prevalence by the time people reach their forties is 26%) it’s still a huge taboo.

It certainly was for Jenelle Marie, diagnosed with herpes 14 years ago and later, with a slew of other sexually transmitted diseases. In a new post on Our Bodies Our Blog, she describes the intense psychological stress of living with an STD and how, over time, as she learned the facts about her own condition, she overcame much of the social stigma. It wasn’t easy.

A lab image of herpes virus

A lab image of herpes virus

Here’s Marie on her initial diagnosis by a not-so-sympathetic doctor:

At 16, when our family doctor peered at me with a lazy eye, through thick glasses, and accompanied by a partially missing ear to tell me my genital herpes outbreak was the worst case he’d ever seen, I was devastated. Embarrassment coursed through me as he handed me a prescription and sent my mother and me on our way – sans brochures, additional information, and references to resources, support groups or even a mention of the vast number of people living with an STI everywhere. I was a pariah – a leper – even the doctor was disgusted by my condition.

For years, I accepted my fate and considered myself as being punished for having been sexually active before marriage. As a high-schooler, I was called a slut or a whore and “friends” of mine forewarned men who took interest in me that I would merely infect them, hurt them, and they should steer clear entirely. I actually maintained some of those friendships for a period of time, not knowing otherwise about STIs and those who contract them, thinking myself deserving of such treatment.

Now, she’s an activist, educator and founder of the STD project, a site dedicated to eradicating the stigma os sexually transmitted infections. Marie writes:

It wasn’t until a few years ago I began to see myself for who I truly was: a beautiful, intelligent, thoughtful, and valuable individual who just happened to contract a long-term infection. In fact, my infection had not stopped me from obtaining two honors degrees, getting married, conquering my fear of heights by going skydiving – not once, but three times – or pursuing my dreams by auditioning for “American Idol…”

Due to the immense stigma behind contracting an STI, most people don’t speak openly about their experiences. However, as people, we learn best through community. Naturally, we are pack animals – we nurture our young for years beyond most other mammals and we develop complex (and hopefully, healthy) relationships with others outside of our family nucleus. It makes sense then we need others to help overcome obstacles and boundaries – in this case, contracting an STI and/or living with an STI.

So, I’m willing to tell you how horrible my experience has been at times, and how I’ve found incredible happiness, love, success, and rewarding relationships despite living with an STD all in hopes you can move through the process with much more clarity, community, and understanding than I once endured.

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